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  • Programme Area 2

Pharmacoepidemiology

  • Disease register
  • Long-term safety
  • Therapy effectiveness

Benefits and risks of new therapies

With the help of large clinical-epidemiological cohort studies, the Pharmacoepidemiology working group investigates the long-term safety and efficacy of new rheumatism drugs on a comparative basis. Our aim is to provide physicians and patients with reliable evidence on the safety profile under everyday conditions and thus increase the safety of therapy for risk groups.

The group is continuously developing both the technical requirements for data collection (online register, patient apps, automated monitoring) and the methodological basis for data analysis.

Team

+49 (0)30 28460-621

strangfeld@drfz.de

+49 (0)30 28460-764

adrian.richter@drfz.de

+49 (0)30 28460-749

franziska.frederking@drfz.de

+49 (0)30 28460-657

doreen.huschek@drfz.de

+49 (0)30 28460-639

malte.kramer@drfz.de

+49 (0)30 28460-623

y.meissner@drfz.de

+49 (0)30 28460-639

alina.purschke@drfz.de

+49 (0)30 28460-757

martin.schaefer@drfz.de

+49 (0)30 28460-639

vera.zietemann@drfz.de

+49 (0)30 28460-623

eva.voll@drfz.de

+49 (0)30 28460-766

tanja.ellmann@drfz.de

+49 (0)30 28460-758

fritz@drfz.de

+49 (0)30 28460-745

mandy.grope@drfz.de

+49 (0)30 28460-633

kamenz@drfz.de

+49 (0)30 28460-745

hannah.krop@drfz.de

+49 (0)30 28460-745

jacqueline.lohr@drfz.de

+49 (0)30 28460-745

svitlana.mamonova@drfz.de

+49 (0)30 28460-638

st.meixner@drfz.de

+49 (0)30 28460-746

jasmin.sandor@drfz.de

+49 (0)30 28460-745

samuel.sasu@drfz.de

+49 (0)30 28460-745

gisela.schulze@drfz.de

+49 (0)30 28460-628

anke.prenzel@drfz.de

+49 (0)30 28460-759

corina.walter@drfz.de

+49 (0)30 28460-746

wuthe@drfz.de

+49 (0)30 28460-628

zernicke@drfz.de

+49 (0)30 28460-639

ghislaine.blum@drfz.de

+49 (0)30 28460-749

ronja.ramien@drfz.de

+49 (0)30 28460-749

tatjana.rudi@drfz.de

+49 (0)30 28460-745

felix.butzke@drfz.de

+49 (0)30 28460-766

nora.dreger@drfz.de

+49 (0)30 28460-745

florent.du_prel@drfz.de

+49 (0)30 28460-745

joshua.rau@drfz.de

+49 (0)30 28460-745

janne.schmutzler@drfz.de

Cooperation partners

  • Working group Register Research in Rheumatology (Regierer)
  • Working group Health Services Research (Callhoff)
  • Working group Paediatric Rheumatology and Health Services Research (Minden)
  • Dr. Gerhard Krönke
  • PD David Simon
  • PD Tobias Alexander
  • Dr. Thomas Dörner, Medical Clinic specialising in Rheumatology and Clinical Immunology, CCM
  • Dr. Stefan Willich ,Institute for Social Medicine, Epidemiology and Health Economics, Charité – Universitätsmedizin Berlin

Prof. Dr. Ulrike Haug and Dr. Tania Schink, Leibniz Institute for Prevention Research and Epidemiology – BIPS, Bremen

  • Deutsche Gesellschaft für Rheumatologie (DGRH)
  • Bundesverband der Rheumatologen (BDRh)
  • RheumaLiga Deutschland
  • EULAR (European Alliance of Associations for Rheumatology)
  • Deutsches Netzwerk Versorgungsforschung, Berlin
  • Global Rheumatology Alliance

Rheumatological clinics and facilities

Due to our collaboration within the RABBIT and the Rhekiss register we have collaborations with over 300 rheumatologists allover Germany.

  • Dr. Matthias Schneider, Prof. Dr. Rebecca Fischer-Betz, Prof. Dr. Jutta Richter, University Hospital Düsseldorf
  • Dr. Bernhard Manger, Prof. Dr. Georg Schett, University Hospital Erlangen)
  • Cornelia Glaser, Freiburg University Medical Centre, Department of Rheumatology and Clinical Immunology, Freiburg
  • Dr. Jörg Henes, University Hospital Tübingen, Centre for Interdisciplinary Rheumatology, Clinical Immunology and Autoimmune Diseases, Tübingen
  • Dr. Hans-Martin Lorenz , University Hospital Heidelberg
  • Dr. Xenofon Baraliakos, PD Dr. Uta Kiltz, Ruhr University Bochum, Rheumatism Centre Ruhr Area, Herne
  • Dr. Jörn Kekow, Prof. Dr. Eugen Feist, Hospital Vogelsang-Gommern
  • Dr. Christoph Specker , Hospital Essen
  • Dr. Andreas Krause, Immanuel Hospital, Rheumatology and Clinical Immunology, Berlin
  • Dr. Peter Herzer and Prof. Dr. Klaus Krüger, Munich
  • PD Dr. Frank Behrens, Frankfurt
  • Martin Feuchtenberger, Burghausen
  • Silke Zinke and Dr. Kirsten Karberg, Berlin

Universities

  • Prof. Dr. Monika Klinkhammer-Schalke , University of Regensburg
  • Dr. Felix Mühlensiepen, Center for Health Services Research, Faculty of Health Sciences, Brandenburg Medical School Theodor Fontane, Rüdersdorf
  • Prof. Dr. Carsten Oliver Schmidt, Prof. Dr. Jean-François Chenot, Prof. Dr. Henry Völzke, University Medicine Greifswald, Institute for Community Medicine, Greifswald

The RABBIT register is supported by long-term shared funding from various manufacturers of innovative drugs. The DRFZ has full academic freedom in conducting the register and publishing the results.

  • AbbVie
  • Alfasigma
  • Amgen
  • Bristol-Myers Squibb
  • Biocon
  • Fresenius Kabi
  • Hexal
  • Lilly
  • Pfizer
  • Samsung Bioepis
  • Sanofi-Aventis
  • UCB Pharma

Rheumatology clinics

  • Prof. Dr. Nathalie Costedoat-Chalumeau, Dr. Anna Molto, Internal Medicine Department and Rheumatology Department, Hospital Cochin, Paris INSERM, Université de Paris,  France
  • Prof. Dr. Marianne Wallenius, Institute of Neuromedicine and Movement Science, Faculty of Medicine and Health Sciences, NTNU, Norwegian University of Science and Technology, Trondheim, Norwegian National Advisory Unit on Pregnancy and Rheumatic Diseases, Dept. of Rheumatology, St Olavs Hospital University Hospital Trondheim, Norway
  • Prof. Dr. Frauke Förger, Department of Rheumatology, Cantonal Hospital St. Gallen, Switzerland
  • Dr. Laura Andreoli, Department of Clinical and Experimental Sciences, University of Brescia, Brescia, Unit of Rheumatology and Clinical Immunology, ASST Spedali Civili di Brescia, Brescia, Italy
  • Prof. Karen Schreiber, Danish Centre for Expertise in Rheumatology ,CeViG, Danish Hospital for Rheumatic Diseases, Sønderborg, Denmark
  • Prof. Axel Finckh, Geneva University Hospital, Rheumatology Division, Geneva, Switzerland
  • Prof. Pedro Machado, University College London, UK
  • Prof. Anna Molto, Rheumatology Department of Cochin Hospital, Paris, France

Universitäten

  • Prof. Kimme Hyrich, University of Manchester, Division of Musculoskeletal & Dermatological Sciences, Manchester, UK; Lead of the British Society of Rheumatology Biologics Register
  • Prof. Jeffrey Curtis, Division of Clinical Immunology and Rheumatology at the University of Alabama at Birmingham ,UAB), Birmingham, USA
  • Prof. Johan Askling, Karolinska institute and Karolinska University Hospital, ARTIS register, Stockholm, Sweden
  • Prof. Merete Hetland, Rigshospitalet, Department for Rheumatology and Spine Diseases and University of Copenhagen, DANBIO

Rheumatological register

Collaboration within the 20 other international register holder within the JAK Pot collaboration

  • Pfizer
  • Lilly
  • AbbVie
  • Alfasigma

and others