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Rhekiss: Rheumatism – Fertility and pregnancy

Rhekiss is a nationwide register to record the course of disease in patients with inflammatory rheumatic diseases who wish to have children and are pregnant. Since 2015, in collaboration with the Rheumazentrum Rhein-Ruhr e. V., we have been prospectively collecting data on the course and outcome of the pregnancy and the development of the child up to its second birthday. The inflammatory rheumatic diseases covered by Rhekiss include rheumatoid arthritis, spondyloarthritis, psoriatic arthritis, juvenile idiopathic arthritis, systemic lupus erythematosus, other collagenoses, vasculitis and autoinflammatory syndromes. Data is collected regularly from both rheumatologists and patients. The results will help to improve the counselling and management of women with rheumatism who wish to have children and during pregnancy.

Duration

Since 2015

Head of project

Figures from Rhekiss register

Status March 2025

2200

women have been included, either with an active desire to have children or an existing pregnancy

1900

pregnancies have been observed

120

rheumatological facilities are collecting data

AG Strangfeld

Pharmacoepidemiology